Manuscript describing multilevel partner engagement
This paper presents our approach to implementing a comprehensive engagement plan for the MS-CDRN and provides a guiding framework for developing a partner-engaged and patient-centered research network. For more information, click here.
STAR Patient Centeredness of Research Scale
A seven-item scale that uses 5-point Likert ratings to assess the extent of person-centeredness of research products. For more information, click here.
Community Engagement Studio
Consultative sessions for researches to receive input on their work from patient partners and other non researchers. For more information, click here.
Engagement Guidance & Resources For Patient-Centered “Data-Only” Studies
All studies involving STAR CRN are patient-centered and require a rightsized stakeholder engagement plan indicated by the level of funding, resources available, and scope (e.g., pilot study versus a large-scale). For more information, click here.
STAR CRN Glossary
List of commonly used acronyms and abbreviations within STAR and our health systems. For more information, click here.
PCORI-Funded Study GUIDED-HF – Toolkit
The PCORI funded study GUIDED-HF is a study focused on caring for patients with acute heart failure (AHF) discharged
from the emergency department (ED). For more information, click here.
Return of Value
Dr. Consuelo H. Wilkins shares what return of value in healthcare research means and why it is important to consider what will be shared with research participants after a study is complete. For more information, click here.
The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit research organization that seeks to empower patients and others with actionable information about their health and healthcare choices.
For more information, click here.
PCORnet®, the National Patient-Centered Clinical Research Network, is intended to improve the nation’s capacity to conduct health research. For more information, click here.
Additional PCORnet resources:
The PCORnet Knowledge Repository is a searchable peer-to-peer repository that includes resources that can inform future work in patient-centered research.
For more information, click here.
The STAR CRN Glossary was created by the STAR Engagement Team (SET) and STAR Advisory Council (SAC) at STAR CRN to compile a list of common terms and acronyms and their definitions.
For more information, click here.