STAR CRN partners include a diverse range of patients, clinicians, investigators, community partners, caregivers, and advocates who contribute a wealth of individual lived experience and expertise. Our partners provide meaningful, comprehensive feedback to STAR CRN leadership, operations, and investigators that helps shape the development and implementation of person-centered outcomes research and intentional, right sized engagement leading to the goal of enhancing relevant research for health decisions and increasing the desired health outcomes of the patients and communities we serve.
Types of Partners
Patient Partners
STAR CRN patient partners are involved at multiple levels and
include a diverse range of patients, community partners, caregivers,
and advocates who contribute a wealth of lived experience and
expertise. Our partners provide comprehensive guidance to STAR
CRN leadership, operations, and investigators to help shape the
development and implementation of person-centered outcomes
research and engagement best practice to increase desired
health outcomes. Support is available to STAR CRN collaborators
requesting resources on engaging patient partners and guidance on
developing patient-centered study plans.
Industry Partners
STAR CRN has collaborated with industry partners such as
Boehringer Ingelheim, Novartis, Novo Nordisk, Eli Lilly, Amgen, and
others. Industry partners that collaborate with STAR CRN have
access to a diverse patient population and with a proven track
record of real-world evidence research and clinical trials.
Community Partners
STAR CRN is committed to building community trust and bi-
directional partnerships with the shared goal of improving
community health. Community partners include health and social
service providers, community health organizations, faith-
based organizations, public health agencies, health
advocacy groups, community health workers, federally qualified
health centers, and health-focused coalitions. Support is available to
STAR CRN collaborators requesting resources on engaging
community partners and guidance on developing engagement and
dissemination plans.
Research Partners
STAR CRN provides guidance for designing, implementing, evaluating,
and disseminating the results of research projects. Research partners
of STAR CRN are provided a broad array of support related to
regulatory issues, governance,data privacy, patient
partner engagement, and access to the Common Data Model that
provides synchronized data from STAR sites.
Government Partners
STAR CRN collaborators are given the opportunity to receive
planning support for grant submissions with various government
agencies, such as the National Institute of Health (NIH), National
Institute of Diabetes and Digestive and Kidney Diseases (NIDDK),
Patient-Centered Outcomes Research Institute (PCORI), Centers for
Disease Control and Prevention (CDC), and many others.
Our Patient Partner Stories
Partner Resources
Manuscript describing multilevel stakeholder engagement
This paper presents our approach to implementing a comprehensive engagement plan for the MS-CDRN and provides a guiding framework for developing a stakeholder-engaged and patient-centered research network. For more information, click here.
STAR Patient Centeredness of Research Scale
A seven-item scale that uses 5-point Likert ratings to assess the extent of person-centeredness of research products. For more information, click here.
Community Engagement Studio
Consultative sessions for researches to receive input on their work from patient partners and other non researchers. For more information, click here.
Engagement Guidance & Resources For Patient-Centered “Data-Only” Studies
All studies involving STAR CRN are patient-centered and require a rightsized stakeholder engagement plan indicated by the level of funding, resources available, and scope (e.g., pilot study versus a large-scale). For more information, click here.
STAR CRN Glossary
List of commonly used acronyms and abbreviations within STAR and our health systems. For more information, click here.
Return of Value
Dr. Consuelo H. Wilkins shares what return of value in healthcare research means and why it is important to consider what will be shared with research participants after a study is complete. For more information, click here.