Dr. Consuelo Wilkens and Dr. Cuffe, along with stakeholders Neely Williams and Bob Stevens, recently attended the Building Trustworthiness in PCORnet conference in Washington, D.C. on March 28-29th. In clinical research, we often ask: why don’t they trust us? This puts the burden on the patient/participant. Instead, the question is: how are we trustworthy? The focus of this workshop was to explore this question. PCORnet hosted a dynamic workshop to begin a critical dialogue about ethics, trust, and engagement, not just for PCORnet, but clinical research overall. Presenters catalyzed a broad dialogue about these issues by listening deeply to communities (the experts in this topic) and examining examples from inside and outside of health. The purpose of the sessions was to foster meaningful discussion through provocative, brief presentations, and the participant discussion.
Click HERE to read more about the meeting.