Congratulations to Dr. William Heerman and the PIs and staff that worked on the Weight Cohort Study. On March 1 BMC Obesity published their paper, “Willingness to Participate in Weight-Related Research as Reported by Patients in PCORnet Clinical Data Research Networks.” The article in its entirety can be found here.
On October 4, Duke hosted a face to face meeting for the Mid South Clinical Data Research Network. Topics discussed included Marketing and Outreach, Stakeholder Engagement, Informatics, Sustainability, and the forthcoming PCRF. All the attendees enjoyed hearing remarks and presentations from Drs. Iain Sanderson, Russell Rothman, Jacquie Halladay, Rob Califf, Crystal Cene, Arlene Chung, and […]
Recently, Linda Brown from Columbia, TN shared her story with the ADAPTABLE Team. Here’s what she had to say: “Fortunately for me, my heart disease has been relatively minor. A single event and new medication has made my life relatively unchanged. However, my family history has a different story. All male members on the paternal […]
Mid-South CDRN Co-PI Tim Carey speaks on the importance of Collaborative Research Groups for patients and clinicians. The Mid-South CDRN will co-lead 3 of the 11 announced PCORnet Collaborative Research Groups (CRGs). The CRGs bring together experts from multiple networks to generate high-priority research questions that will focus on providing patient-centered outcomes. The CRGs will […]
The Mid-South CDRN participated in the ADAPTABLE study kick-off meeting in Washington, DC on October 28th. The meeting was attended by patients, clinicians, and research staff, which allowed for a very interactive and collaborative kick-off meeting. The meeting included a panel discussion with the patient partners, as well as a panel discussion with the Principal […]
The Rev. Neely Williams wrote an op-ed, published by The Tennessean, calling for a louder patient voice in clinical research. “The harsh reality is this: If we are from a community or population that is consistently underrepresented in the clinical research process, we are expected to simply make do, to accept the knowledge gaps […]
Neely Williams, a member of our Stakeholder Engagement Team, shares why she was a natural fit for the PCORnet Bariatric Surgery Study. As a patient and a health advocate, she recognizes that clinical research outcomes are for all stakeholders. From clinicians, to the patients they serve. “Everybody wins, if we are able to develop a […]
Dr. Consuelo Wilkens and Dr. Cuffe, along with stakeholders Neely Williams and Bob Stevens, recently attended the Building Trustworthiness in PCORnet conference in Washington, D.C. on March 28-29th. In clinical research, we often ask: why don’t they trust us? This puts the burden on the patient/participant. Instead, the question is: how are we trustworthy? The […]